About this blog.

My son was diagnosed with PDD-NOS at 24 months. I created this blog to bring meaning to the often-confusing label. Sometimes I have answers. Other times, just more questions.
Showing posts with label ABA. Show all posts
Showing posts with label ABA. Show all posts

Thursday, June 4, 2009

Update: Recovery

Just a quick update to this post on recovery. I'm not the only one calling bullshit on this one.

Michelle Dawson, who attended the conference at which Deborah Fein presented, similarly notes the disconnect between the media reports and the actual study [via The Autism Crisis]:

...But in her presentation, as in her abstract, Dr Fein did not associate the findings she reported with any kind or quantity of autism intervention or treatment. When
speaking at IMFAR, she expressed doubt that this in fact could be done.

Dr Fein clearly added more information when speaking with the media. She expressed her view that recovery from autism, what Dr Fein calls "optimal outcome," was associated with early intensive ABA-based autism interventions. Like all researchers, she is free to say what she wishes to the media. However, her statements relating kinds and amounts of intervention to outcomes in autistic children are not supported by any of the data she chose to present at IMFAR 2009, either in her oral presentation or in a series of related posters.

Indeed her study design does not permit any conclusions about effectiveness of interventions, no matter how "effectiveness" is defined. She has not conducted a true experimental design in which well-known sources of bias can to some degree be accounted for and therefore the effects of interventions, their benefits and harms, can usefully be assessed.

Taking creative liberties with the media. What the heck right? There's no harm to bandying about the term "recovery" and linking it to a therapy when that link is unsupported. It's not like parents are looking for hope or anything, are they?

People are starting to realize that the emporer has no clothes. Even mommyblog "ParentDish" expressed skepticism. Ditto for a popular professional association newsource I read. Deborah Fein does a disservice to her patients/subjects and the cause of promoting ABA mandates. You don't gain credibility with hyperbolic claims based on fantasy.

Sunday, April 19, 2009

"Recovery" reaches the masses.

Visit msnbc.com for Breaking News, World News, and News about the Economy



This video segment features Karen Exkorn, author of The Autism Sourcebook, and her son Jake. I read the Autism Sourcebook early on and, as I blogged, I did not find it compelling. Bluntly, I don't personally believe that "recovery" can be sourced to ABA, so I found her story misleading. Rather, I believe that the natural process of maturation, combined with a rich environment (which ABA can provide), causes certain children to cease to meet the diagnostic criteria. (But keep in mind, I'm a blogger, not an expert.) And on a personal note, I bristled at her recommendation that a 2 year old be subject to 40 hour per week of treatment.

To be clear: I'm not discounting the benefits of ABA, where the results are short of recovery. ABA is probably the best therapy for many classically autistic children, and I don't doubt for a moment that ABA is the best bet for a positive outcome for many.

Incidentally, Jake was initially diagnosed with PDD-NOS, not classic autism.

Friday, October 3, 2008

TGIF

We're going to Vermont this weekend, to take in the foliage and chill out. I leave you with autism on Supernanny. It includes a demo of ABA, for the curious/uninitiated. For the child featured, you will note two things about ABA: (i) it appeared to work in the short-term, to some degree; and (ii) it takes a lot of resolve. You don't dabble in ABA; you commit to it. As I have blogged, we don't believe that one size fits all when it comes to treatment. We didn't use ABA, and we are happy with our decision. But each parent should assess all of their options independently, including ABA.

Have a nice weekend, everyone.

Added: Just to clarify, I'm not anti-ABA. If I'm anti-anything, it's the idea Patience alluded to in comments - that ABA is a panacea, without which all children on the spectrum are doomed to a life of low IQ. That having been said, I believe that ABA can make a significant difference in quality of life for many. Treatment decisions are highly personal, and they reflect clinical evidence, as well as the family's norms. And for that reason, I'm not doing anything other than saying "this is what worked for Brad."