tag:blogger.com,1999:blog-6839052051073416028.comments2023-11-02T07:30:27.680-07:00A Little Bit AutisticLaurahttp://www.blogger.com/profile/07764022300747217993noreply@blogger.comBlogger1373125tag:blogger.com,1999:blog-6839052051073416028.post-10025980734709350902017-05-22T14:47:42.511-07:002017-05-22T14:47:42.511-07:00My 2 y/o son had recently been diagnosed with ASD ...My 2 y/o son had recently been diagnosed with ASD although I have heard the evaluations mentioned "sensory behaviors" as part of the description entailing his diagnosis.<br /><br />My son has amazing eye contact, loves to sing, has a better memory than both his parents (not kidding either), knows and recognizes upper and lower case alphabet, counts to 20, and has a vocabulary of over 400 words to date.<br /><br />He visually stims only and has surpassed milestones intellectually. His motor skills are great and mimics amazingly. His ABA therapists are always amazed at his ability to identify and learn the "curriculum".<br /><br />I am lost as his ASD diagnosis does not jive. I know this is why the spectrum exists but it does not give a specific reason as to "why". It is merely a blanket diagnosis for the unknown and I hate it!IVF Survivorhttps://www.blogger.com/profile/03151829361046172880noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-58080103562946067422017-02-08T07:48:30.947-08:002017-02-08T07:48:30.947-08:00
To mom and dads who worry about their child not t...<br />To mom and dads who worry about their child not talking according to the given criteria: <br /><br />I want to write this post for some time. I am a mom of 4.5 year boy who was a late talked. His sister spoke at age of two like an adult and he was three and did not talk.<br /><br />We took him to different doctors, who said he was fine and we need to wait. One said he thought he was quite manipulative and intelligent, but I did not see that. We read to him every night since he was born. No single night was without the book or two. We did everything we did with his sister, but he was different.<br /><br />He was very difficult. He would always run. He would run and look at the side while running (totally something I read was a sign of autism). Could not walk normally outside. Constantly engaged. When you google for this symptoms online – they all indicate to autism. Absolutely all. I read so many post from so many parents, all being worried, but never ever I read a follow up post, where those parents share how things developed after a year or two.<br /><br />So this is for all those who worry: My son, 4.5 now, speaks his native language + French + some German (being in international school). He knows all the letters. He can read all the names of the kids from the class. Knows all the continents and which animals live in which part of the world. Teacher, who was very sceptical at age of three, is so proud now. A few days ago, she told us how he was the only one who could set the puzzle in 3D. None of the kids had that ability, even though they would show them the process. She said that he is very advanced now. <br /><br />We still talk to him a lot. We still read a lot. He does have grammar issues time to time, but is doing great.<br /><br />So dear parents, have faith in your kids. Don’t give in to all the comments online. Play with your kids, talk to them, invest in their education. They will speak when time. Each kid is different and not all are developing equally. <br /><br />A mom from Austria, Vienna.<br />Anonymoushttps://www.blogger.com/profile/01194060284489965521noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-62851969597967528552014-12-02T20:35:18.212-08:002014-12-02T20:35:18.212-08:00I was talking to the doctor, Brad flipped over his...I was talking to the doctor, Brad flipped over his wooden puzzle, dumped out all of the pieces, and started lining them up on the floor. That stage, when he persevated a lot, only lasted a few months. He didn't respond to name well back then, and he was mostly nonverbal. (When he started speaking, he persevated less.) So I don't fault that doctor for the diagnosis. <a href="http://www.takeaway4less.co.uk/" rel="nofollow">Takeaway 4 Less</a><br />Elizabeth J. Nealhttps://www.blogger.com/profile/01824134730760179008noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-73176430202102762152013-02-14T19:10:08.497-08:002013-02-14T19:10:08.497-08:00Autism spectrum disorders (ASDs) or Autism is the ...Autism spectrum disorders (ASDs) or Autism is the disorder of neural development. This is noted in different types of development disorders like verbal and non verbal communication, repetitive behaviors and restricted interests. <a href="http://www.eparentz.com/autism-rules-of-the-game/" rel="nofollow">Autism Handbook For Parents</a><br />Chadhttps://www.blogger.com/profile/00029721600158237996noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-23319411258480614462013-01-09T13:58:59.483-08:002013-01-09T13:58:59.483-08:00I agree with you on every point. It's disheart...I agree with you on every point. It's disheartening (or maybe the better word is crazy) that some people's response has been to call for more guns. <br /><br />I check in on your blog from time to time and I really appreciate your thoughtful posts. lochanhttps://www.blogger.com/profile/18215653832995730501noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-26749203155994381822012-10-05T09:48:05.935-07:002012-10-05T09:48:05.935-07:00This was a great read Laura! I came across your bl...This was a great read Laura! I came across your blog while I was reading articles on <a href="http://www.ml-law.net/medical-malpractice-attorneys/philadelphia-law-firm-specializing-in-medical-malpractice-and-medical-negligence-law-firm/birth-injury-attorneys" rel="nofollow">birth injuries</a> because I keep hearing how they happen more than people realize. I'm happy I did because this was a very informative and interesting post. Thank you for sharing this with us!Kate Dunkinhttps://www.blogger.com/profile/13662900147365599971noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-89781655092728356312012-09-02T21:14:57.804-07:002012-09-02T21:14:57.804-07:00Hi Brad
My name is Jenna. You are a brave courage...Hi Brad<br /><br />My name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.<br /><br /><br />I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.<br /><br />I wrote this poem<br />Each of us are Special<br />Each of us different,<br />No one is the same<br />Each of are us are unique in our own way,<br />Those of us who have challenges, we smile through our day.<br />Those who of us who have challenges, we smile through our day.<br />It doesn't matter what others say<br />we are special anyway.<br />What is forty feet and sings? the school chior<br />http://www.miraclechamp.webs.com Smilen Champhttps://www.blogger.com/profile/16312018180245012719noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-74038290671452335292012-08-19T16:39:20.347-07:002012-08-19T16:39:20.347-07:00That is VERY cool!!! my son is 13 and has PDD-NOS...That is VERY cool!!! my son is 13 and has PDD-NOS. His speech isn't there yet, but he has come A LONG way since kindergarten =)Anonymoushttps://www.blogger.com/profile/11666408489121298267noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-19978996826582815022012-08-17T19:42:02.230-07:002012-08-17T19:42:02.230-07:00Awesome!Awesome!Krishttps://www.blogger.com/profile/14934033119198457032noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-35459692165664382832012-08-11T14:07:58.849-07:002012-08-11T14:07:58.849-07:00YAY! The milestones that take the longest to reac...YAY! The milestones that take the longest to reach are so sweet when they happen.Michellehttps://www.blogger.com/profile/00015335385484003478noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-11829349391347191732012-07-31T19:21:19.580-07:002012-07-31T19:21:19.580-07:00I just found this site, and I wanted to provide an...I just found this site, and I wanted to provide an educator's opinion. (I am also a mother of a five-year-old child with PDD-NOS.)<br /><br />I know people don't like labels, but labels mean services in the public school system. <br /><br />Are you aware of the changes that are going to go into effect with DSM-V? Getting the label of PDD-NOS is even more important now because once DSM-V goes into effect, there is less of a chance of receiving early intervention services that are key to your child developing his ability to socialize.Karen Chttps://www.blogger.com/profile/02256679103666882858noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-54470406126486587862012-06-25T11:01:16.364-07:002012-06-25T11:01:16.364-07:00my child is also 6. he just had his 3 year eval.
M...my child is also 6. he just had his 3 year eval.<br />My child sounds a lot like yours. He is entering 5k in sept 2012Michelle Kocherhttps://www.blogger.com/profile/00005448877708763974noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-16743402825868793332012-04-17T02:22:16.772-07:002012-04-17T02:22:16.772-07:00That is a very interesting article, and well docum...That is a very interesting article, and well documented. <br /><br /><br /><a href="http://www.cerebral-palsy-birth-injury.com/" rel="nofollow">cerebral palsy & birth injuries</a>Anthony Frosthttps://www.blogger.com/profile/17555831745247606308noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-66005048951015831282012-03-01T20:40:15.374-08:002012-03-01T20:40:15.374-08:00Hi there. dyslexic daughter aged 23 also has slow...Hi there. dyslexic daughter aged 23 also has slow processing speed. Over the years, she's come up with some dandy metaphors:<br /><br />"My hard drive needs to be defragmented"<br /><br />"It's like somebody threw the contents of my filing cabinet on the floor"<br /><br />With the great help of many understanding teachers along the way, she has become a strong self-advocate, and is able to explain to naive professors what the slow processing is all about.Liz Ditzhttps://www.blogger.com/profile/03455722013211350247noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-13884228509414118822012-02-25T12:45:58.436-08:002012-02-25T12:45:58.436-08:00Oh, slow processing speed, how well we know ye. L...Oh, slow processing speed, how well we know ye. Loved reading you again. Still hate those evaluations.Brenda Rothman (Mama Be Good)https://www.blogger.com/profile/17399227210081662280noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-66215834737400521132012-02-22T19:13:04.926-08:002012-02-22T19:13:04.926-08:00Hm, this is a tough one.
Our son is on the lower ...Hm, this is a tough one.<br /><br />Our son is on the lower end of functioning, with a severe to profound intellectual disability. He was in a private school for two years, eight hours a day of VBA, which our insurance paid for. He liked it there and he had fun. But did it make any difference in his development? I'm not sure it did. But other kids in the same school had modest to great gains. He is very, very difficult to engage and so far no one (not us, and not his school team ) has found any consistently surefire ways to connect with him. But we keep trying. <br /><br />You state that the new DSM definition might "represent a way to manage that liability and tie it more closely to a population that is more likely to benefit from the services." But what population is that? You imply that it would be kids like mine, i.e. "lower" on the spectrum. My take is that it is so dependent on the individual kid, and that the functioning level may not be the right measuring stick. Some kids who see great improvements through services seem to have some kind of heightened receptivity to being engaged, taught, lead, etc. -- some kind of "sweet spot" that makes connections possible, regardless of where they are on the spectrum.<br /><br />So if the proposed changes are made, it may prevent a whole lot of kids from getting those services who may benefit greatly from them. And hey, if they're like you're son and they "max" out or test out, that's great. You say "the benefit of coverage is uncertain" in cases like yours. But I'd say that's the case for each and every kid. What else can we do but try?Beccahttps://www.blogger.com/profile/11024455320379274689noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-22761480723054258612012-02-22T10:12:42.792-08:002012-02-22T10:12:42.792-08:00This is such a hard issue!! Alex is definitely in ...This is such a hard issue!! Alex is definitely in that "does he or doesn't he?" crowd. Just for background, we had 3 major evals done. One dx ASD, the other two dx "severe ADHD with a sensory component." Is this really the same thing??????? That is the question!!! (I personally think the answer is yes.)<br /><br />He easily met the educational definition for autism for his IEP. However, he gets minimal IEP services. Basically, just some accommodations for his slow processing like extra time on tests, less homework, etc. NO OT, speech, aide, or pull-out services. We are lucky he is followed by a great special ed teacher in the regular classroom. <br /><br />In short, he has deficits to be sure. Does he or did he ever need ABA or other intensive services? We were told from the beginning "No." He did have speech and OT which we paid for out of pocket because VA has no mandatory coverage for autism/developmental disorders(or at least it didn't at the time.)<br /><br />I do think you need to break down the symptoms experienced and provide therapy where there are clear deficits regardless of the diagnosis. This is what we tried to do despite the fact that no insurance coverage was provided (except a small part of OT.) I think there should be mandatory coverages when moderate/severe deficits are present regardless of dx. I had to learn to stop being so hung up on his dx, because I realized we were never going to get a definitive one.Krishttps://www.blogger.com/profile/14934033119198457032noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-28622410199310809932012-02-22T10:00:34.690-08:002012-02-22T10:00:34.690-08:00Glad to see you back! Alex'x biggest challeng...Glad to see you back! Alex'x biggest challenge is his slow processing speed. It was discovered during his neuropsych exam 2 years ago and affects everything he does.Krishttps://www.blogger.com/profile/14934033119198457032noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-25360347153282612712012-02-22T09:39:02.722-08:002012-02-22T09:39:02.722-08:00I am glad you are back! It looks like we might hav...I am glad you are back! It looks like we might have a re-avluation after only 2 years due to moving state. I am trying to avoid it as the state we are moving to will use progress as a way to cut services.Michellehttps://www.blogger.com/profile/00015335385484003478noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-11339175692463546692012-02-21T04:01:15.509-08:002012-02-21T04:01:15.509-08:00ahem...you've been...er...organizing the jelly...ahem...you've been...er...organizing the jellybeans for that long too. Best wishes to you, E and your brain. :-)Laurahttps://www.blogger.com/profile/07764022300747217993noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-87847068298570391342012-02-20T19:56:45.420-08:002012-02-20T19:56:45.420-08:00Hi! You're back! Missed you so much. I'm g...Hi! You're back! Missed you so much. I'm glad you're feeling less rollercoasterish. And I'm glad Brad is getting what he needs. It's not like that here. Love to you and yours xx<br /><br />ps 4 years, holy crap you've been blogging a long time. And I've read it all. 4 years of you. And things really have changed for you. You seem much more emotionally strong about Brad. <br /><br />pps I'm not commenting on the newest post because I can't concentrate on it at all. My brain is falling apart.....tracey (aka rainbowmummy)https://www.blogger.com/profile/00606735165180129068noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-27322522058051096442012-02-17T08:35:24.080-08:002012-02-17T08:35:24.080-08:00I really know what you meanI really know what you meanFloortime Lite Mamahttps://www.blogger.com/profile/07988840423227903784noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-78389775852043591312012-02-16T10:31:20.519-08:002012-02-16T10:31:20.519-08:00I am also so happy to find this blog. I'm stru...I am also so happy to find this blog. I'm struggling with the same issues. My son's been diagnosed with high-functioning autism and sensory processing "issues" but he's deaf -though with the use of bi-lateral cochlear implants, he hears amazingly well- he is unique in his diagnosis and personality. The more I learn, the more I feel that he doesn't really fit these diagnoses. I know there's more I can do to help him if I could only figure out what it is! <br /><br />BTW: I love the recorded interactions between your two boys. I also have a "normal functioning" older son and the similarities are striking!Anonymoushttps://www.blogger.com/profile/00238956656034499415noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-61738470224903439442011-12-08T22:40:16.678-08:002011-12-08T22:40:16.678-08:00Hello!
My daughter just turned 3 in Nov. I believ...Hello!<br /><br />My daughter just turned 3 in Nov. I believe she has SPD and definitely some autism (shes dxed at mild to moderate). Your son has done so amazingly well! Could you tel me what all therapies you've done for him so far?Jennyhttps://www.blogger.com/profile/08769473433598684630noreply@blogger.comtag:blogger.com,1999:blog-6839052051073416028.post-15695276349972396112011-11-17T18:12:51.695-08:002011-11-17T18:12:51.695-08:00I'm happy I found this blog. My son is 3 1/2 a...I'm happy I found this blog. My son is 3 1/2 and we are in the process of having him evaluated for sensory issues. A school social worker observed him at school and she told me he has some characteristics of autism spectrum but is 'on the fence' because he's so high functioning. He really struggles with any group participation, makes limited eye contact, lacks pragmatic skills. He talks to himself a lot too....kind of narrates cartoon episodes. To us he's had quircks but I never once thought he had autism. Our journey is just beginning....<br />Did your kids exhibit 'signs' prior to preschool? <br />Thankskbaczewskihttps://www.blogger.com/profile/17714128629908303905noreply@blogger.com