Friday, October 31, 2008
To disclose or not disclose?
We struggled with this question in the wake of Brad's diagnosis. So here’s my after-the-fact 2 cents. I honestly think there’s no one who you “must” tell right away, other than perhaps close family and your other children that are old enough to understand the situation. Maybe you wait a few weeks or months to tell the grandparents, particularly if they won’t be seeing your child in person for a while or if you’re in line to get a more thorough evaluation or second opinion. Their generation tends to be very out of touch with what an autism diagnosis means today. To them, autism most likely conjures up images and ideas that bear little semblance to Brad.
And then there's the issue of those who don't know. What to do when other parents go on and on to you about all their children’s developmental progress? Or complain that their child is nominally late doing x, y or z. We know bragging and complaining is just what parents naturally do, and there's no reason they shouldn't. We notice it because of our own heightened awareness. We try not to let it bother us. We try to be as happy for others as we are for ourselves and our own family. In a similar vein, we also make a point not to get jealous of other families who seem to have it easy compared to us. It’s hard not to fall into a trap where you think other people don’t have their own problems, but we realize that nearly every family has its issues (more so than ever in these economic times), even though some might not be as life affecting or day-to-day as a child on the spectrum. We adore Brad so much and we love our family just the way it is. Brad is a blessing.
Friday, October 24, 2008
Here's all we have left.
That's the status. 8 refills to go. The countdown starts.
Sunday, October 19, 2008
Saturday, October 18, 2008
But that doesn't stop Jenny McCarthy from hysterically claiming that vaccines caused her son's autism, most recently as part of a cover story in my beloved guilty obsession, Us Weekly. I shudder at the number of women of child-bearing age who will read this story and be terrified to vaccinate.
For anyone who puts stock in the subjective testimonial of Jenny McCarthy, consider the source. No, I'm not going to link to the crass Candy ad. Or the Playboy pictorial. I'm linking to a report that Jenny McCarthy runs a group called indigomoms.com. The group has since been deactivated, at the behest of her handlers.
Who are indigo moms? In short, they believe their blue-eyed kids are psychic. Watch this Good Morning America segment to learn more (or just to get a really good laugh, the good part is at 1:33 min.)
Abc News Segment About Indigo Children via 31337videos.com
Related: "Indigos", "Crystals" and Jenny McCarthy
Friday, October 17, 2008
From one Bostonian to another, I'm here to tell you that my autistic kid is wicked smahhht. This is him "reading" a book:
Also, you look like a lesbian.
Wednesday, October 15, 2008
Polly hypothesizes that conditions like autism and ADD are not disorders, but rather the manifestation of certain personality types under the Myers-Briggs Type Indicator. She writes:
Indeed, the blurring of the line is seeping into pop culture, as evidenced by this "Wired Wiki" entitled "How To Deal With Your Mild Autism." The Wiki reads:
What I've found is that in places like Wrong Planet, people are aware of MBTI and that many of them type INTJ or INTP, which are among your typical engineers, and tiny percentage of the overall population. Incidentally, Einstein is often anecdotally typed as INTP....
The people making the rules, who decide what acceptable behavior is, are usually SJ [ed. Sensing, Judging] types (most elementary school teachers are ESFJ, I read that
in People Types & Tiger Stripes), so SJ kids (who are wired to be cooperative and follow the rules, and generally are the kind of kids unimaginative teachers like to have in classrooms) get to have standard language disorders. There aren't all that many NF [ed. Intuition, Feeling] types, but I'd say they land in with the ADD or the ASD depending on their total personality mix.
As for ADD, and I know I'm just spouting on this, I've been known to joke that the introverted SP [ed. Sensing, Perception] types get that label (extroverted ones get ADHD), the NT [ed. Intuition, Thinking] ... types get ASD. [Editorial notes and links added.]
Einstein likely had it. Mozart, too. Even BitTorrent creator Bram Cohen. No wonder Asperger's — a mild form of autism — is known as the geek syndrome. If you feel awkward in social situations, have obsessive-compulsive tendencies, and are overly sensitive, you may have it as well.The problem with this theory, in this blogger's opinion, is that it in effect reduces autism to just a social impairment and does not take into account communication impairment or other neurological symptoms, such as impairment of executive function, hypotonia, dyspraxia or ataxia, not to mention the host of other physical symptoms that correlate to autism, such as seizure disorder and gastro-intestinal problems. Personality doesn't tell the whole story. Plus, engineers and other math types often have the personality without the litany of neurological symptoms. In my opinion, it is more likely that autism impairs the subject's ability to intuit verbal and/or nonverbal social cues which, in turn, causes social impairment and results in social introversion and the other traits which characterize INTJ and INTP.
Added: Polly clarifies: "When I listed those personality types as corresponding to pathologies, I intended to tie the idea of an underlying brain glitch as manifesting in different ways depending on the underlying temperment, not to claim that there was no glitch."
Thursday, October 9, 2008
The finding has emerged from a study of autism among 378 Cambridge University students, which found the condition was up to seven times more common among mathematicians than students in other disciplines. It was also five times more common in the siblings of mathematicians....Correlation between autism and having a father in engineering is, in part, what drew me initially to the Einstein Syndrome when Brad was first flagged for autism, and I had a rather myopic view of what autism is. My husband went to MIT, my father in law is faculty there, and my grandfather was also an engineer - all signs that Brad had "einstein syndrome." This seemed like a suitable life-raft for me to cling to at the time.
Separate studies have shown that the fathers and grandfathers of children with autism are twice as likely to work in engineering.
I've since rejected the einstein syndrome hypothesis for several reasons which I have blogged about. The study excerpted above is further evidence that the genius/idiot paradigm upon which the Einstein Syndrome rests is false.
The London Times article quotes autism research luminary Simon Baron-Cohen:
Our understanding of autism is undergoing a transformation.
It certainly is. Certain present company excluded.
Friday, October 3, 2008
Have a nice weekend, everyone.
Added: Just to clarify, I'm not anti-ABA. If I'm anti-anything, it's the idea Patience alluded to in comments - that ABA is a panacea, without which all children on the spectrum are doomed to a life of low IQ. That having been said, I believe that ABA can make a significant difference in quality of life for many. Treatment decisions are highly personal, and they reflect clinical evidence, as well as the family's norms. And for that reason, I'm not doing anything other than saying "this is what worked for Brad."